A bride-to-be says she was "traumatised" after all her hair fell out "'completely out of the blue".
Sophie Hitchen, 24, was shocked to find "handfuls" of hair falling away from her head back in April, due to alopecia.
However, now she says she's determined to be a role model for others with the condition.
By the middle of May, Sophie had lost about 90% of her hair, and was left with wispy strands – which she decided to shave off in a bid to "take back control".
Sophie, from Felixstowe, Suffolk, is now also losing her body hair, including her eyebrows – and described the initial experience as "traumatising".
But the determined young woman, who is due to get married in October next year, said she now hopes to be a role model for other young people facing the same struggles she did.
Sophie, who works as a sales team leader for a shipping company, said: "Going through this has been very isolating and lonely.
"I found that a lot of girls on social media have helped me get through this over the last couple of months.
"I wanted to be that girl for other people. I don't want anyone to feel like they're going through this alone."
She added: "I've had so many lovely messages over the last few weeks from other girls or their parents who have said that my posts have really helped them.
"Nobody knows enough about alopecia or what really causes it. I just want to raise as much awareness as possible."
Sophie said she first started noticing her hair falling out in early April.
She said: "I noticed that clumps started coming out when I was in the shower, or when I was brushing my hair.
"At first I thought nothing of it, thinking it was probably just knots that were falling out. But then over the next week or so, I noticed that my clothes were ending up getting absolutely covered in hair.
"I left it another week or so but when it continued to get progressively worse I had a phone appointment with the doctor, who suggested I have some blood tests done."
Sophie's blood tests came back clear – but shortly afterwards, she said her fiancé, James Keeble, spotted her first bald patch at the back of her head.
She returned to the doctor, who sent her away with some lotion for eczema.
But at the end of April, she went to see a specialist scalp doctor (trichologist) – who finally diagnosed her with alopecia areata.
She said: "After that, it happened really, really rapidly. That's what was so hard about it at first.
"For the first three weeks, I didn't know how to cope. I didn't get out of bed. I couldn't sleep, because I was too afraid of waking up to find more hair on the pillow.
"I had zero control over it. I didn't wash or brush my hair for weeks, because seeing the hair coming out was traumatising. It took over my life."
Sophie said she began to cancel all her wedding dress fittings as she couldn't face continuing with her wedding planning.
She described going to look round her wedding venue as a "distressing" day – as it was right in the midst of her hair falling out.
She said: "For as long as I can remember, I've wanted to get married at this venue. We booked it without even looking round it, because I wanted it that much.
"But when the day came to go and see it, it was right in the middle of everything happening.
"I pinned my hair back as tight as I could that day, so that I wouldn't have to think about it.
"It should have been the happiest day of my life – but I can't tell you how distressing it was."
Eventually, on May 15, Sophie decided to take back control – and asked James, 35, to shave off what little hair she had left.
She described it as a "relief", saying it felt like she was "taking back control" of what had been controlling her over the last six weeks.
"I'm naturally quite an anxious person, so I'm so proud of myself for somehow managing to take some form of positive out of this," Sophie added.
She is now on a six-week course of oral steroids to try and stop her immune system from attacking her hair.
Sophie is due to return to her dermatologist later this month to discuss the option of continuing with a potentially more effective course of steroid injections directly into her scalp.
She said: "There's no cure for alopecia – it's more about calming my immune system down so I don't lose any more hair from my body."
Sophie added that her hair loss came "completely out of the blue" – and that the trichologist and dermatologist she saw about it were "clueless" as to what could have caused it.
She said: "Everyone who I have spoken to medically has asked if I have gone through any significant trauma or stress in my life.
"But I haven't – not to the extent that it would have caused this. There was no trigger for it."
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She has recently spent £2,500 having a special hair 'unit' custom-made to fit her head – which is taped to her scalp so that she can sleep in it and even swim in it.
Sophie admitted it's taken away a lot of the about how she's going to "feel pretty" or how she's going to feel like herself when it comes to my wedding.
But Sophie added: "I do feel fortunate that I've been in a position to pay for everything privately.
"But I think that more needs to be done for those that aren't as lucky. The NHS can contribute to two wigs a year, but they're not very good wigs.
"Getting help has been a real struggle, and I think there needs to be more done to change that."
To follow Sophie's alopecia journey, visit her Instagram page, @sophiehitchen.
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